Stories From the Heart: Paris, With New Eyes

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I am a 49 year old man diagnosed with Asperger’s Syndrome, living in the UK, and I have just returned from my first trip abroad in 8 years. It was a three day stay in Paris with my girlfriend. Not much to remark about there, one would think. But my last trip abroad had also been a trip to Paris in 2002 , and since then my world has been totally transformed.

Back in 2002, I was married, in full-time employment and most significantly, a heavy drinker. I had never heard of Asperger’s Syndrome. The following year my marriage broke up and I lost my job, due mostly to my drinking. I used alcohol to deal with the overwhelming sense of anxiety which I had had since childhood. I had also abused tranquilizers to help cope with the levels of fear and stress I experienced in day-to-day life.

After two emergency hospital admissions for liver failure and alcohol poisoning, I had two pieces of fortune. I got a place in rehab and also heard of AS for the first time. It seemed to be a perfect description of both my problems and my abilities. The CBT I received at the rehab, helped me to stay sober to this day, along with my understanding of myself. I received a formal diagnosis and moved to a coastal town to study and start over as a sober man, aware of being on the spectrum.

I now help deliver Asperger awareness training, write and have had a book published about my experience: ‘Asperger Syndrome & Alcohol: Drinking to Cope?’  I discuss how I used the alcohol as a tool to deal with the intense anxiety I felt in dealing with day-to-day life. I have met many people who have relatives or friends with AS and who also have substance misuse problems, and I explain to them that when you understand the nature of your condition, it is simpler to find coping strategies.

I have downsized my life considerably. I used to work part-time and am now self-employed. As a sober person I am not using any substance to deal with my anxiety, therefore, with the help of friends and family, I make sure that I can avoid anxiety-inducing situations wherever possible.

On my recent trip to Paris, my partner acted as my buffer and interpreter to the strange world I was in. Previously, when I drank, a trip to Paris passed in a blur. Now, although still very anxious, I could appreciate the beauty and magic of the city. I find that both the therapy I received, as well as the knowledge of my condition, enabled me to live a new and fulfilling life. I know others can, too.

By Matthew Tinsley

* Stories From the Heart is an ongoing series of user contributed heart warming stories, that shine light on the Autism experience.

Stories From the Heart: Perfect As They Come

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When I was pregnant with my firstborn, we had done everything to ensure that it all went perfect. The prenatal checkup, all the doctors’ appointments, and genetic testing for disorders we were concerned about. Everything was perfect.

After 13 hours of labor, my daughter arrived. Since she’d gotten wedged around the pubic bone and took two hours to get out, there was a whole team of doctors there to make sure she was OK. And she was OK, but she had two severely clubbed feet.

The doctor described it as a “packaging defect”. It wasn’t genetic. It wasn’t environmental. It was merely a symptom of how she was positioned in utero. That didn’t make it any easier. My precious perfect firstborn she had golf-club shaped feet at 90 degree angles to her legs. We sat through the lectures and advice. We took her to her first orthopedist at 5 days old. She was in corrective casts up to her hips before she was a week old.

Being a January baby, we managed the first weeks fine. She wore long dresses and onesies that concealed the feet. With spring, however, she couldn’t wear so many layers. Trying to avoid stares, questions, and people’s ignorance.

The worst moment was when I took her for a walk at the mall, and a nice matronly woman started cooing at my daughter. My daughter beamed up at her. The woman then said, “Oh, and let me tickle those cute little toes.” Her face changed when she pulled the blanket back and saw the two casts. “Oh, my God, how on Earth did you break these baby’s legs?” And everyone in earshot stared at me. I stammered that she had a specialist, it was doctors’ orders, but she had already marched off from what she deemed an abusive mother.

After that I later took to carrying my pediatrician and orthopedists’ cards with me to whip out if confronted again. If they had questions, they could ask the doctor. Fortunately, no CPS or police ever came by. After six months of corrective casts and another year of corrective shoes, my daughter’s feet were pronounced “fixed”.

She learned to walk late, but was running and climbing everything within weeks. She is now an active acrobatic two year old that has climbed everything in the house but the fridge. Unlike other birth defects, ours was “fixable”. Downs’ Syndrome can’t be undone. Heart defects require terrifying surgery and constant worry. In that regard, we are utterly blessed.

It wasn’t until my son was born that I realized how different it was to have a “normal” baby. It wasn’t until I had him screaming that I realized the depression I’d had with my daughter. And how much easier it was to take him into public, without the fear and worry that taking her into public had wrought.

He was a perfect baby with ten fingers, ten toes, and all the body parts in the right place. It’s such an amorphous ideal. Yet we don’t realize how much can possibly go wrong until it does. And how precious that health and vitality is until you realize how tenuous it is.

Author Unknown

* Stories From the Heart is an ongoing series of user contributed heart warming stories, that shine light on the Autism experience.

Stories From the Heart: Lessons from the Classroom

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As I sat in the corner of a classroom alone and ignored on my first day of what was supposed to be a “wonderful experience”, I began to think that maybe I had been wrong to sign-up for Psychology Practicum. I had looked forward to taking part in Practicum- a “hands-on experience” that would bring the concepts I’d been learning about in my Psychology class to life- ever since my older sister had participated in the program and told me what a wonderful experience it would be for me.

By spending an hour of my day in a classroom for mentally and physically disabled students, I imagined that I would single handedly change the lives of several children. I would teach them to count, recognize colors, and I would give them immeasurable amounts of love and attention. Visions of the lessons I would teach and the good works I was about to perform had danced in my head as I wrote my name on the Practicum sign-up list.

I could not have been more wrong about what, or who, would be taught. The first day didn’t live up to what I had envisioned the experience to be. I was placed in an elementary school class of seven boys, but they were not as affectionate as I had hoped. They didn’t shower me with hugs and kisses. In fact, they barely even acknowledged me. I could not imagine how I was going to teach them to count if they would not even tell me their names.

As I headed for my car I wondered what I had gotten myself into. Not one single boy had so much as looked at me, and I was starting to wonder why I hadn’t just stayed in Home Economics, where I could have learned to bake cookies and gotten an easy A without the burden of writing daily journal entries about a bunch of children who did not know or care about my existence. I was wrong again.

The next day their little faces looked at me when I walked in the door, but they soon resumed their games of basketball and toy cars. On Wednesday they began to warm up to me and curiously wander towards my corner. By the last day of the week a little boy named Chandler ran up when I arrived and said, “My Anna is here!” Needless to say, by the end of my first week working with those seven boys, I was in love.

The ice had been broken, and every week after that, I grew closer and closer to “my” kids as they opened up to me more and more. By the end of the semester when I got there each day the kids would not stay in their seats because they were so eager to greet me at the door.

When I would leave at least one child would always run after me and beg to come back to school with me. They may have had physical or mental handicaps, but I still marvel and the unbelievable grasp they had on what was really important in life.

Though none of the children were physically blind, they were all blind to outside appearances. Though none of them will ever be able to obtain a degree in psychology, they were all amazingly sensitive to the emotional needs of others. Though many people may pity them, they were some of the happiest, most joyful people I have ever known.

Children with special needs are amazing, but that is not to say that working with disabled kids is always an easy job. It requires lots and patience and understanding, as I learned during my time in a special- needs classroom. However, for the special people who teach, parent, and befriend such children, the rewards far outnumber to trials.

Though some days I was ready to scream when I left the classroom, my heart was completely stolen. No matter what frame of mind I was in when I entered the classroom, by the end of the hour my spirits were completely lifted. One horrible day I was on my way back to school when I recognized the vehicle of my classmate and friend Andy in a ditch surrounded by police cars.

A few days later, the boy who I had gone to school, summer camp, and church with since I was just a toddler, died. When Andy passed away everyone in our entire school was devastated. His mother was our assistant principle, and every teacher, janitor, and student knew Andy’s mischievous ways and warm grin.

Afterwards I was so sad each day when I went to class. I never mentioned anything about Andy to the boys, and even if I had told them in words they would not have been capable of comprehending what I was telling them. Somehow the boys just seemed to know that I was sad, and they knew just what to do.

During the weeks after Andy’s death the boys were on there best behavior for me; I never had a single behavior problem. I also got more hugs from them than I had gotten in the rest of the semester combined.

I do not know if Xzavier will always remember his colors, but I know that I will remember the feeling I got each time he would hugged me, or asked me to play “baket bull” with him, even though he rarely got the ball in the hoop. He taught me that no matter what your disability is you can still smile and radiate with personality.

Xzavier cannot speak because he has a tracheotomy in his throat to help him breath. However, he has taught me not to judge people by what is on the outside. The first time I saw him I saw a little boy with a chipped front tooth and an incision in his throat that sometimes leaked mucus. I no longer see the tracheotomy, but instead I see a beautiful boy who laughs uncontrollably at the mention of “calling his mom” to report that he “pooted” at snack time.

Looking past outside appearance is just one of the many lessons those boys taught me. To explain everything I learned from them would be impossible, but I do know a few things for sure. I know that they have made an impact on my life that will last forever.

I also know that no text book could have even begun to teach me the lessons I learned from them. I feel very blessed to have had the opportunity to learn from seven understanding and beautiful boys. They taught me lessons no one else could have, truths that have strengthened my character for a lifetime.

Author Unknown

 

* Stories From the Heart is an ongoing series of user contributed heart warming stories, that shine light on the Autism and special needs experience.

Stories From the Heart: Odd Twist of Fate

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“She’ll probably never walk.” Imagine the bleak picture this announcement evokes to a set of panicked parents. Concerned when their twenty-four-month-old daughter hadn’t begun to walk, a set of anxious parents took their child in for an examination, unaware such a proclamation would be made. Those were the exact words the doctors said to my parents.

After numerous tests, doctors proclaimed that I had Cerebral Palsy. It was predicted that I would probably never walk or speak or be a productive member of society. Once the diagnosis was made, years of difficult circumstances followed. I was placed in special education classes, as well as in occupational and speech therapy.

Although my disability was later labeled as “mild,” it was very pronounced in my younger years. I struggled to form an identity, which was a difficult undertaking when I was teased for being clumsy and weak.

From an early age, my peers taught me I was unacceptable. To survive, I often turned inward for salvation and peace. And that’s when I learned I had strength after all. The feelings came easily enough; the anger at being alienated, the sadness at being different, and the fear of not being able to find my place in the world.

I began to write down the pain. Only the written word allowed me to fully express myself. And after the hurt was written and therefore explored, it began to fade. Not entirely, of course. No one can live a lifetime without it. But the wounds began to heal as I wrote of promise, of hope, and of possibilities.

In school, I was able to excel in my English classes. I won several writing contests in elementary school. My D.A.R.E. (Drug Abuse Resistance Education) essay was voted to be the best by my sixth grade classmates. I had the honor of reading that essay in front of the entire school. In junior high school I excelled at advanced English. In high school, I wrote several compositions that earned me college scholarships.

Nine months after college graduation, I got a break that made me realize I may have found my purpose. My last college course’s final assignment was to do a research paper on a topic of importance to us. Since I was about to enter the work world, I chose the issue of disability disclosure during the job hunting process.

My professor loved my paper and mentioned I should get it published. I submitted my work to Careers & the Disabled. In the fall of 1999, my English paper became my first published article.

Over the last six years, I’ve had articles published in a variety of publications. I was editor-in-chief of Banshee Reeks Nature Preserve’s newsletter, The Preserve Press. I was an editorial assistant of a non-profit magazine. I had a short paragraph published in ‘Chicken Soup for the Recovering Soul’. And the proudest moment of my life occurred in September 2005 when I self published my first novel, ‘The Butterfly’s Dance’.

I have, thankfully, discounted the doomed prophecy of those doctors of yesteryear. Today I am a fully functional member of society. I have a college degree, live on my own, and earn my own income. I am a freelance writer and a published novelist. And I feel this is only the beginning.

An interesting thought occurred to me during this whole process. Without my disability, without the pain and the struggle to find my identity as a disabled person, this glorious gift of exploration wouldn’t have been possible.

It’s an odd twist of fate, I know. My love of writing would be unacknowledged if not for my disability. I now see that without my disability, I wouldn’t have discovered my true ability.

By Christyna Hunter

* Stories From the Heart is an ongoing series of user contributed heart warming stories, that shine light on the Autism and special needs experience.

Stories From the Heart: I Never Thought

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Like everyone else I never thought that they would have a child with special needs. But I did. I knew that Kyler was special when he was born. He was born 3 weeks early by caesarean section, and weighed only 5 lbs. He was a clingy baby, always needing his mommy, never wanted to be left alone. When he got older, he was saying all kinds of words; book, bird, water, etc.

Then all of a sudden the words stopped. I didn’t hear the word mommy until he was almost 4. I would take him out with other moms and their kids, but I would always leave in tears. Kyler wouldn’t listen to me. I heard everything: “You need to learn to parent”,  ”Why think about more kids when you can’t even be a mom to the one you have?”, “You are definitely not cut out to be a parent.” Their words hurt, but I pushed on.

When Kyler turned 3, we were told that Kyler was Oppositional Defiant Disorder.  Then he turned 4 we were told that he was Attention Deficit Hyperactivity Disorder, and when he was 6 we learned that he was Pervasive Developmental Disorder – Not Otherwise Specified, basically putting him on the Autism Spectrum.

But you know what? I’m not a bad mom, God graced me a beautiful little boy, who is smart, witty, funny and incredibly sweet. Kyler has taught me tolerance, and patience. He gifts me with laughter, and intelligence. A child with special needs can teach a person so much, without the child ever knowing it. It brings people closer together, and makes a person become more aware of the world around them.

No, I never thought that I would have a child with special needs, but I can’t imagine the world without him.

Author Unknown

* Stories From the Heart is an ongoing series of user contributed heart warming stories, that shine light on the special needs experience.

Stories From the Heart: My Sons Adventures

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Oh, no, this cannot be happening this early! Christopher came into the world two and a half months early and weighed in at 2.7 pounds on August 22nd 1973. The doctors and nurses whisked by so fast that the waiting father and grandmother could not get an answer as to the gender of the tiny baby. Finally one doctor replied to their question, “It does not matter; it is going to die anyway.”

Well Christopher strongly disagreed, he was a fighter. Two months later he got to go home. A few weeks after he came home the visiting nurse arrived to a smoke filled house. I was young inexperienced mother and she arrived I was sterilizing the bottles, and as all the water boiled out it all melted. Thankfully as time went on I learned mothering skills.

When Christopher was around 6 years old, and other kids loved watching cartoons, his favorite TV show was the weather channel. And his favorite book was the telephone book! Christopher had learning problems in school, and other problems.

When he was 12 years old and by far the shortest child in class he started taking hormone shots just enough to help, and the shots stopped when the doctor told Christopher that the growth hormone was “doing wonderful things in his Fruit of the Looms”.

His adult height ended at 5`2″. However he was the strongest looking teenager with solid muscles from his weightlifting that he loved. He was in awe of body builders and also had no fear of anyone. He saw a rough looking burley tattooed man that towered over him and asked him, “Wow, you sure are buff, how much can you bench press?” the man answered him with a small smile on his face from the kids bravery, and possibly realizing that this was a young innocent teenager with a mental disability.

Christopher studied hard and graduated from his special education high school a year early. But then it seemed that is where his ambition stopped and his stepfather said to him, “Either you further your education or get a job, or you are out of here.” It was a tough love ultimatum.
Christopher responded with, “Then I guess I am out of here.” We assumed at first that he went for a walk.

About 3 weeks later the stepfather got a call from Arizona saying that Christopher had joined the circus and was doing a fine job, but thought he would like to know where he was. I had been worried sick over his whereabouts, and we booked a flight to go get him.

Christopher came home and told his story of hitch hiking from California and of walking allot, and climbing mountains by his fingertips to get there. This is just one story of his of how brave he is. There are so many more. As the saying goes: big things come in small packages.

Author Unknown

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Karen Simmons
Mother, Wife, Author, Founder & CEO of AutismToday.com

Stories From the Heart: Sensitivity Training 101

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“I want to audition for the news show!” Christina said to me in a tone that could not disguise the fact that she had some sort of speech impediment. “I have an idea for the show. I’d like to do special announcements for the band. I play the drums.” She continued in an excited fast paced voice, as I struggled to comprehend every word.

I gave her some papers outlining the requirements for the anchor positions on our daily news show that I was in charge of at the high school. I told her I would notify her of her scheduled audition time. I then related the story of Christina to some co-workers.

I truly did not know how I was going to handle what I anticipated to be a very sensitive situation. My co-workers advised me that although admirable she couldn’t possibly do the job. Little did I know that later I was to have a crash course in sensitivity training that would guide me to a decision that would ultimately change not only my mind, but my life.

That weekend at a family party, my two brothers were trying to have a conversation. It was becoming quite heated because of the fact that one brother, John, has only ten percent hearing left, as a result of the explosion of the bombs from his days as a Green Beret in Vietnam. John is very special to me and has been through a lot in his lifetime.

John was trying very hard to hear his brother Larry above the music and other people talking. He kept asking Larry to repeat himself. Larry got agitated and made some comments about John not being able to hear.

John got up from the table and went outside. I went after him and found him standing by a small creek rolling some seeds around in his hand that he had just pulled off a bush. He was lost in deep thought. Are you all right? I asked.  “I’m tired of everyone telling me that I can’t hear every day of my life. I thought my own family would be a little more sensitive.”

“It`s only Larry, don’t worry about him”, I said. “I’m not mad at Larry. I am mad at myself for being like this” he said sadly.  I reassured him he had been through a lot, and that it wasn’t his fault. We didn’t say another word, but just walked back into the building and rejoined the party.

He has accomplished many things in his career and life and I look up to him as a strong role model. He has never once complained about any hardship life has dealt him. So, I felt that we had shared a special moment that afternoon and that a far greater power was teaching me something I needed to hear.

The next day Christina was scheduled to audition, but she never came in. The crew and I finished with the other students who had auditioned and turned the cameras and other equipment off. As I walked out of the studio I saw Christina.

“Why didn’t you come in for your audition?” I asked. She told me she never got my e-mails. I told her I felt really bad that the auditions were over but she’d have to come back next week.

She asked if she could just sit in front of the camera and see how it felt. “Sure” I said. As I watched, she sat there beaming. Then she said “I wish I could do it now”. “OK,” I said impulsively, “Let’s do it!”

After about four takes of reading from the papers that I had given to all the students for their auditions, she looked at me and said, “I’ll never make it, will I?” All of a sudden I felt an urge to get to know this ninth grader better. We started talking and I found out that Christina like my brother John had overcome many obstacles in her life.

She was born with a hearing impairment and she could only hear certain levels. She compensated for the rest by lip-reading. Had it not been for her working all summer with a speech therapist she wouldn’t have had the courage to try this. I was in awe of this girl. She had so much confidence, pride, and courage; I just knew that somehow I had to get her on the show.

I told Christina that I didn’t want to sound mean, but some students can be cruel and I wanted her to realize what she might be setting herself up for. We talked a while longer and after some consideration I told Christina that I would try out her original suggestion of doing a special announcement for the band.

I asked if she would take a few minutes and write a synopsis about the homecoming parade that the band had participated in that past weekend. I told her that I noticed that when she spoke to me in her own words I understood her better than when she was reading from the papers I had given her. I suggested that she practice it for a while until she felt comfortable. I told her “You`ll do fine.”

I gave her some time to write her story and to memorize it and then I came back to tape her. She had asked if she could get her drumsticks and incorporate them into her audition. Christina looked directly at the camera and performed flawlessly. She took her drumsticks and did a drum roll on the desk and flipped the drums at the camera. She said her closing statement. She was fantastic! I scheduled her for the following Monday morning show.

That weekend the band was going to play at Giant’s stadium. I told Christina to write her story, practice it until she really felt confident in saying it, get it approved by the principal and I’d put her on the show.  She was so excited. She asked if that meant that she had the job. I had previously shared my concerns about putting Christina on the air with the principal. We had pretty much decided that it would be difficult for her to do the show.

I called him after her audition and told him that I had decided to put her on the show. I briefly explained why I had come to my decision and I also mentioned that it was time to challenge our school’s theme, which is “Mutual Respect.” I told him how impressive she was and that he could see for himself because she was in the office waiting to speak to him. As I expected, she won him over.

On Monday, the principal escorted her to the studio and as he walked away just before airtime, he gave Christina thumbs up sign. Christina did her special announcement live throughout the school. The students were so attentive.

That day is one that will stay with me forever. The other members of the news crew were so supportive of Christina and cheered her on with smiles and thumbs up.  I had purposely not told them anything about Christina before hand, only that a member of the band was doing a special announcement. I was pleasingly surprised by their support and their reaction to her.

That week was filled with positive comments from staff and administrators, telling me what a nice thing I had done. My response was that I hadn’t done anything Christina deserved all the credit.

Shortly after Christina’s debut, she came to see me with a chocolate cornucopia filled with cookies and candy. She told me that it was a thank you from her mother for allowing her to be on the show.  I was touched beyond words. As I thanked her we hugged and tears welled up. In that moment I felt that my whole career in education had been worthwhile.

In the back of my mind, however, I knew that one other person deserved a hug – my brother, Johnny. He was the one who opened my eyes to Christina’s predicament. Christina is now our official anchor for the marching band and everyone looks forward to her next announcement. As for me, I can hear a little more clearly now.

By Angelina S. Wicks

* Stories From the Heart is an ongoing series of user contributed heart warming stories, that shine light on the Autism experience.

Stories From the Heart: The Race

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The morning dew, clung to the grass, as the sun began to rise, a little girl stretched with a yawn, and rubbed her weary eyes. A day just like all others yet she managed still to smile. She peered out through her window, and dreamed a little while. This girl, like you was special, unique in her own way, her legs just didn’t have the strength, to run and jump and play.

She prayed each night that they would heal, so she too could share the fun. She wanted to giggle and laugh with all her friends beneath the warm sun. She longed to feel the soft cool grass, the sand between her toes, to walk among the falling leaves, and the cold and crisp snow.

She’d watch the others in their favorite game, in stance to start a race, all crouched down in a single line, such excitement on their face. She’d eagerly shout “Ready. Set. Go”, and they’d take off with a flash. “Oh”, she thought, “how glad I’d be, even if I came in last.”

And then one new and precious dawn, unlike the ones before, she peered out through her window, and rubbed her eyes some more. She thought she MUST be fast asleep, for never had she seen, anything quite as beautiful, not even in her dreams.

There stood a chestnut horse with a golden mane, with legs so large and strong. “Surprise!” she heard her parents shout. “He’s yours. He is not perfect, he’s blind and cannot see. He’ll trust in you to guide him, and together you’ll run free.”

They asked the girl to come and meet him, and they lifted her atop, this horse with a golden mane, and never again would another day, feel quite the same again. The answer to her prayers, for with her sight and his strong legs they’d be a perfect pair each day She practiced hard and learned to ride, this big and noble steed, and knew that she could do all things, if only she believed.

She brushed his coat until it shined, and whispered in his ear, “I never believed in miracles, before they brought you here.”
And then one day along came her friends. She joined them in their game. Her hands held tightly on to the reigns. Ready. Set. Go.

She gave her friends a running start, a fair and distant lead, then like a flash, she bounded forth, with her blind trusting steed. The wind rushed against her hair and she grinned from ear to ear, just then she looked ahead to see, the finish line drawing near.  She felt the spirit in this horse, run hard with all his might, for he now gave her legs to run, and she gave him his sight.

The two longing hearts now soared. The girl prayed for two strong legs, and God gave her four. Together we can do all things, if we only just believe, just as this girl who won the race, with her blind but noble steed.

By Lisa J Schlitt

* Stories From the Heart is an ongoing series of user contributed heart warming stories, that shine light on the Autism experience.

Sensory Disorder Leads Autistic Child to Seek Serenity in Snug Places

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I called out his name repeatedly…

“Jonathan…Jonathan…where are you? …Jonathan!”

No response.

Standing still, very quietly, I hoped to make out any distant sound that would have pin pointed his location…still, I hear nothing.

After quickly looking out the windows and outside doors there was still no sign of Jonathan.

Where could he be?

I checked, and then double checked, every room in the entire house.  In my haste to scan each room I missed the obvious. The bed was not quite right.  It wasn’t the sheets, pillow or quilt…it was the bed itself.

The whole mattress was at a slight angle…BINGO!

After racing back to the bedroom I found Jonathan between the mattress and box spring, calm as can be.

Odd?

Not if you know a bit about Autism, Sensory Integration (SI), sensory processing disorders (SPD) and ADHD, to name a few, and what affect they have on those attempting cope.

Although Jonathan’s act of “snuggling” under the mattress can be unnerving to the uniformed at first glance, there was a method to the supposed “madness”.

Why cram into positions like that as Jonathan did?

For some Autistics the desire to get snug in tight spaces is anything but claustrophobic.  In fact, it can be desirable…even soothing.

Triggers such as noise sensitivity can lead to feeling overwhelmed and the urgent need to cope which explain “odd” behavior such as Jonathan’s.

Dr. Temple Grandin, afflicted by Asperger’s, used to get into a device created to calm cattle down and later invented a device for herself she calls the “squeeze machine”.

Jonathan’s mirroring “mattress” behavior apparently gave him a sense of security via the pressure offered by the mattress.

Compare for yourself…

Feel good heading out into the cold wearing a heavy knit sweater and warm winter coat? How about the firm and loving sensation of an “everlasting” hug? Certainly, you felt secure strapping on a tight seatbelt or close fitting chest harness on your favorite amusement park ride.

Finally, where do you go to “get away” from it all?

Can you now understand how Jonathan’s momentary “escape” under the mattress was simply a soothing experience? Essentially, for Jonathan, under that mattress, there were no distractions or noises…almost complete solitude and serenity.

Ever had your loved one behave similar to Jonathan? Do they like small spaces? What do they do to self-sooth?

Please share your story with me. What did your loved one do that seemed “odd” to stay calm?

To share your story, please leave a comment below.

As always, I look forward to hearing from you.

Karen Simmons
Mother, Wife, Author, Founder & CEO of AutismToday.com

P.S. Here is something I would like to recommend that will give you the tips, strategies, and tools you need to help understand your loved ones “escape” behavior.

To download a video presentation that will help you understand your loved one’s “escape” behavior:
http://www.on2url.com/app/adtrack.asp?MerchantID=22629&AdID=617030

 

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