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BY
DELTHIA RICKS
Parents of children diagnosed with autism and
related conditions say new guidelines urging screening
for all children twice by age 2 is a step in the
right direction - but remains a long way from
providing answers about a perplexing spectrum
of disorders.
In San Francisco yesterday, two clinical reports
presented at the annual meeting of the American
Academy of Pediatrics underscored the nation's
growing problem with autism, which now is believed
to affect one in every 150 children in the country.
The new guidelines provide detailed information
on the "signs and symptoms" of autism
spectrum disorders, conditions that range from
neurodevelopmental and language delays to Asperger's
syndrome, which is often typified by an extraordinarily
high IQ.
Dr. Susan L. Hyman, a member of the academy's
expert panel on autism, said language delays are
usually the first symptom prompting parents to
seek medical advice. But she and other experts
believe there are earlier, subtler signs - sometimes
evident around the age of 18 months - that may
raise parental concerns sooner.
Hyman, an associate professor at the University
of Rochester, doesn't think the new guidelines
will change the rapport between pediatricians
and parents.
"Historically, one of our biggest jobs has
been to reassure parents because there is such
a wide range of normal development," she
said. But she believes the guidelines will help
pediatricians counsel parents.
The new rules call for "universal screening"
between 18 and 24 months, using uniform screening
nationwide. Having the screening done twice will
better aid families, experts say.
On Long Island, some parents think the guidelines
do not go far enough to help parents understand
autism's complexities.
Evelyn Ain of Oyster Bay, the mother of 7-year-old
Matthew, who has an autism-related condition,
said the new approach could lead to excessive
diagnoses. "I think it's a very good idea,
but I am very concerned about why they're doing
it," said Ain, editor of Spectrum, a magazine
she founded for parents of children with autism.
"What kind of training and experience do
pediatricians have, looking for autism or anything
to do with developmental delays?
"I think they're trying to put a Band-Aid
on a very big problem."
Robert Krakow of Garden City, who has an 8-year-old
son diagnosed with autism, underscored that "the
autism label is something that gets in the way."
However, he said the guidelines draw a needed
spotlight to a growing medical issue.
Megan Concannon, a Bay Shore mother, has a 5-year-old
who has been diagnosed with an autism-related
condition.
"Now that they are on board," Concannon
said of pediatricians, "perhaps they will
work with families in finding the cause and finding
a cure for autism. They also need to be open to
the very real possibility that autism is not simply
a psychiatric disorder."
Dr. Melissa Nishawala, of NYU's Child Study Center,
said many parents have long been at odds with
doctors about treating autism. She added that
the new guidelines do not support wheat- and milk-product-free
diets, an approach taken by many parents who say
the dietary regimen helps their children.
Dr. Joel Bregman, medical director of the Fay
J. Linder Center for Autism in Bethpage, applauded
the academy's effort to spot autism earlier. "I
have seen a preliminary version. They look quite
good to me," Bregman said. He said it should
not frighten parents to be aware of early signs.
What to watch for
Some warning signs that a child may have autism
(more often than not, however, children won't
have it)
Not turning when a parent says the baby's name
Not turning to look when a parent points and
says, "Look"
Failing to respond when a parent talks to baby
Smiling late
Failing to make eye contact with people
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