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By
Missy
With the hopes of bringing attention to what
he and many others believe to be an "epidemic,"
PGA golfer Ernie Els arrived at the PODS Championship
in Florida this week with an Autism Speaks logo
sewn on his golf bag -- and in the process revealed
that his 5-year-old son Ben does, indeed, have
autism.
Ernie admits that he was not familiar with autism
just a few short years ago. But at a time when
an estimated 1 in 150 children is being diagnosed,
and boys at a higher rate than girls -- like more
and more families around them -- Ernie, 38, and
his wife Leizl have found their lives profoundly
affected by the disorder.
It's been a bit of a challenge...Like any family
will tell you, it's not easy. And it's a change
of life, a change of priorities. You've got to
be ready for it. And it's happening more often.
I never knew about it, never thought about it,
until it's in your lap.
The level of functioning and degree to which symptoms
are exhibited varies widely among children and
adults who have been diagnosed with autism spectrum
disorder (ASD). While Ernie didn't go into specifics
about the severity of Ben's condition, he did
say that his son was "quite affected,"
adding, "he's a lovely boy." Families
dealing with the diagnosis often find themselves
overwhelmed by not only the costs associated with
treating their children, but also by disagreement
within the autism community about what those best
methods of treatment are.
Acknowledging as much, Ernie says that he hopes
by bringing attention to the issue that uncertainty
will eventually be alleviated.
It's so new to everybody, that a lot of people
have different ideas. After seeing just about
every [specialist] in the world, I decided on
this path we're going to go...I've got a bit of
a profile where it will grab attention. That's
what this problem needs. And with that, hopefully,
more people will get involved and we can start
getting to what causes it and what can be done
to help it.
As a professional athlete, Ernie is in a unique
position: He and Leizl will most likely never
need to worry about finding the funds to get Ben
the help he needs. But, as a professional athlete,
Ernie can also use his identity and fame to raise
funds for others, as well as raise funds for autism
research. It's something Ernie said he's eager
to do.
We've been taking our time and trying to assess
what we need to do, what we want to do. We're
doing a lot for Ben. But there are a lot of kids
like him out there, and worse than him. We're
in a fortunate position where money is not a real
problem for our family. We can get Ben the right
help. Some people are not in the same position.
We'd like to raise money for the poor. And I'd
like to know why [the rise in diagnoses] is happening.
It's gone crazy the last couple of years. It's
an epidemic.
Ernie said that the decision to go public was
first cleared by his eldest child Samantha, 8,
whom Ernie praised for being "unbelievable"
with her younger brother. His daughter, Ernie
says, "is more like a mother figure, not
a sister figure" for Ben and he and Leizl
"wanted [Samantha] to feel comfortable, because
obviously, this is going to get attention."
Bob Wright, co-founder of Autism Speaks, is thrilled
by the family's decision. Says Bob,
It's very important having prominent people get
out in front of this issue. It's hard to get people
to do that. Having Ernie, somebody who is prominent
all over the world, to get out here is immensely
helpful.
In agreement is Ernie's fellow PGA golfer Cliff
Kresge. After seeing the logo on Ernie's bag Cliff
revealed that his own 8-year-old son, Mason, also
suffers from autism. Says Cliff,
We need someone [of Ernie's] stature to get some
notice to this problem that we all have. There's
so many people like that out there, and so little
is being done. If they can find cures for cancer,
surely they can find a cure for autism. Hopefully,
with Ernie's notoriety, we can get to the bottom
of this.
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