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The
Interactive Autism Network (IAN) - the first national
online autism registry spearheaded by the Kennedy
Krieger Institute - has registered an unprecedented
number of individuals and families living with
autism. Never before have researchers been offered
access to such a large pool of family-provided
data on this puzzling disorder. In only one month,
IAN (http://www.ianproject.org/) has achieved
significant milestones:
* More than 13,000 registered participants
* Representation in all 50 states as well as
the District of Columbia, American Samoa, Northern
Mariana Islands, Guam, Marshall Islands and Palau
* Diverse family registration, including: six
sets of triplets, 37 sets of identical twins and
157 sets of fraternal twins
Researchers from institutions across the country
have already begun to access IAN data to:
* Supplement and enhance current research studies
* Compare and validate existing research results
obtained from smaller sample sizes
* Explore hypotheses for future research and
search for parallels among individuals with autism
and their families in a way that was not previously
possible
"In one short month, IAN has become the
country's largest pool of autism data," said
Dr. Paul Law, Director, Interactive Autism Network
at the Kennedy Krieger Institute in Baltimore,
Maryland. "The fact that IAN has already
become a vital resource for researchers, so early
in its lifespan, bodes extremely well for the
potential of this project, and ultimately, to
the pursuit of answers in autism."
IAN has become successful in registering families
largely due to the tight knit nature of the autism
community and the outpouring of support from parents.
Testimonials continue to echo the great need for
and tremendous potential of IAN.
"What better opportunity to help our children,
to help each other and to learn more about autism.
We have been given the power to DO SOMETHING to
combat autism. Go to the website, accept this
responsibility & watch us change the future
of this heartbreaking disorder."
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