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Approach she used met with criticism
BY CARLEY DRYDEN
Actress
Jenny McCarthy's best-selling memoir of raising
and healing a child with autism has drawn much
attention to the developmental disorder -- along
with a fair amount of debate over the validity
of her approach.
McCarthy couldn't care less about the latter.
"To me, helping thousands and thousands of
families far outweighs any kind of negativity,"
McCarthy says. "I love knowing that what
worked for me worked for thousands of others."
The actress and author -- who already had penned
three books on motherhood -- became the willing
poster girl of autism, going public with her son's
struggle in May. Her fourth book, "Louder
Than Words: A Mother's Journey in Healing Autism"
(Dutton, $23.95) detailing her battle with her
son Evan's disorder from diagnosis at age 2 1/2
to recovery, was released in September.
Along with providing helpful resources for parents,
the New York Times best-seller portrays every
painful detail of McCarthy's battle to help Evan
through the disorder and even describes the crumbling
and eventual collapse of her marriage to actor-director
John Asher.
The brash, comic TV and film actress did for autism
what actor Michael J. Fox did for Parkinson's
disease -- catapulting the condition into the
center of the media spotlight.
Larry King, Oprah Winfrey and People magazine
scrambled to interview McCarthy about her approach
to treating autism.
McCarthy treated Evan, now 5, using the Defeat
Autism Now (DAN) approach, a project of the Autism
Research Institute in San Diego, which combines
medical, nutritional and behavioral practices
for treating the disorder.
She placed Evan on a strict gluten- and casein-free
diet, known to help autistic children with gastrointestinal
problems. Gluten is a protein found in wheat,
rye and prepared foods such as bread, cakes, pastas
and cereals. Casein is found in dairy products.
McCarthy also took sugar and yeast out of his
diet.
Meanwhile, Evan underwent applied behavior analysis,
a one-on-one therapy that breaks more complex
tasks into simple steps. He also worked with a
speech therapist and a DAN doctor.
In discussing "Louder Than Words," McCarthy
has made it clear she is simply a mother telling
her personal story, not a doctor promoting a one-size-fits-all
cure for autism. But tales of her struggle have
resulted in a negative backlash from those who
say she is forcing her treatment plan down parents'
throats.
"Standard academics will just bash"
the diet "because they don't know anything
about it," says Dr. Daniel Amen, a nationally
recognized psychiatrist and brain imaging expert
with a clinic in Newport Beach, Calif.
Christy Crider, director of administration for
Autism Behavior Consultants, a Southern California
agency that helps parents dealing with autism
and behavioral disorders, says some parents are
angry with McCarthy because they have tried the
diet and it failed, and it hurts them to see her
promoting it. Other parents, she says, just haven't
taken time to listen to McCarthy's story fully.
For Evan, the diet worked; his language skills
doubled, and he has been mainstreamed into a traditional
school setting.
Autism specialists say the diet has been around
for years, but it took the actress' story to bring
its success rate to public attention.
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