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Many persons with autism will not attempt to
do things unless they are certain that they know
exactly what is expected, and that they can actually
accomplish what is expected. They "lock in"
on their "concrete" and "literal"
interpretation of the "rules", as they
understand these. Once they know how to do something
they want to do this "perfectly".
One youngster could only do his schoolwork in
pencil or on the computer. There was major conflict
with the school and behavioral "melt down"
when he was required to use pen. With pen he could
not turn in "perfect" work. This boy
had to be able to correct his "errors".
His parent insisted that the school accept pencil
or provide him with access to computer to allow
him to correct his work before turning this in.
He was also given extra time to complete work
to his own standard.
Perfectionism may affect a child with autism
in another manner. It is so difficult for some
to understand how the "rules of the world"
work, that once they recognize what to do, they
may feel that they have to do everything that
they know how to do. They try to do it all.
One youngster is an excellent baseball player
in many ways. He could catch, pitch and hit the
ball hard. But when he was on the field he wanted
to catch and field the ball and get the player
out every time. When he couldn't accomplish this
he "melted down". He was "failing"
at the game of baseball. This was the end of his
"competitive" ball career. He can still
enjoy one-on-one catch and batting practice.
Some children with autism can become very depressed
when they are unable to "win" in social
situations.
One boy felt that he was playing life as a game
and that the game was "rigged." The
game needs to be rigged in this boy's favour.
He needs to feel like those who are supporting
him are in the game, on his side.
How to support a person displaying perfectionist
anxiety: Give the "answer key to life".
Try to remember your grade 9 algebra, or grade
11 physics. Remember where we were given a text
with the correct answers in the answer key at
the back of the book. Without the key we might
not have even attempted to do the difficult problems.
With the answer key available we were confident
that we would be able to correct our work if we
made any simple mistakes, we were not anxious
that we would look stupid, and we were certain
that we would be able to get credit for our effort.
These are pretty motivating circumstances that
allow one to gear up, to put out the effort to
do the difficult, new problems.
Having the answers available did not make us
too dependent, not even if we looked at the answer
first to get an idea about how we might do the
problem. We still had to show our work. Having
the "answer key" served to clarify the
end goal and allowed us to organize our effort.
Having the answer key made us more efficient.
(Did you ever have the experience of working all
night on a problem and tearing out your hair because
you couldn't get the same answer? Then the next
day the teacher told you that the book had the
wrong answer?)
Apply the metaphor to your child:
Metaphorically, think of a successful life for
these "perfectionist" children with
autism as being like an "open book, multiple-choice
test". The secret is for caregiver to give
the child exposure to the "answer key"
before you challenge him to take the "test."
Model the required actions. Demonstrate yourself
or to another before requesting the child's participation.
Metaphorically, caregiver should also open the
book to the correct page and highlight the sentence
where the child will find the correct answer.
Give positive feedback to others for doing the
correct actions. Then all your child has to do
is to recognize that he already knows what to
do to be correct, and may be willing to attempt
action.
Many children who live with autism are great
at remembering what they have memorized. Try to
make life into a series of pre-organized "tests".
Give them the "answer key" and make
life into an "open book" test.
Application one: Solving social problems that
are too full of conflict and ambiguous meanings.
Write out every rule and every interaction. Have
the child "study" this in the form of
social stories and scripts. These "work"
for many children and adults. Pre-rehearse the
life script for successful interaction before
each interaction. Make sure the child has rehearsed
and can "pass" the test. Only then,
engage the child in a manner that will allow him/her
to call on his/her memorized, rehearsed, and externally
generalized role to the immediate situation.
For some children it may help to put each step
of each interaction onto a 3x5 index card to assist
them to memorize the sequence and get it into
concrete format. Many of our children are very
"smart"; they may be unable to figure
out how to apply what they know. Solve these problems
for them. Make life "goof proof." Where
they are vulnerable to their own perfectionism,
protect them by using these structured procedures
so that they will be confident that they know
what is expected of them.
Application two: What to do when a person who
is a perfectionist "freezes" and is
unable to apply himself or herself. How to get
them "unstuck".
If the child does display autistic rituals, I
recommend offering the child a suggestion to do
something from their own ritualistic and sensory
repertoire. They may be so ritualized that, if
prompted with one of their own rituals, they may
be likely to fall back into one of these. If they
do so, they become "unfrozen." Using
their own ritual may allow them a successful,
"perfect" way to escape from their own
momentary anxiety.
Many children do this automatically. The goal
here is to use their own ritual to cause a child
who might otherwise "melt down" to become
"successfully dependent" on their caregiver
to show them a familiar "way out".
Nathan E. Ory, M.A.
Registered Psychologist
Challenging Behavior Analysis and Consultation
Copyright 2001
challengingbehavior@shaw.ca
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