by Author, Janice Adams
When I began to do the research for the book , "More
Creative Ideas, From age eight to early adulthood",
my youngest son who has autism was eight years old.
It was very important to me that the book contain
a section related to the issues and concerns of
adolescence since they would soon affect our own
family. That section was, by far, the most challenging
part of my research.
Part of the challenge came from the fact that
many of the parents with whom I spoke were also
limited in their personal knowledge because they
came from an era where their children were institutionalized
at a young age.
The greater challenge was, and is, related to
our own personal values and taboos, ( parents
and professionals alike) surrounding the topic
of sex and sexuality. Many people still feel extremely
uncomfortable even discussing the subject. There
are also cultural beliefs which in some instances
can cause barriers.
Various individuals told me that the families,
or the educators involved with the adolescent,
believed the developmental delay of the individual
with autism would mean he/she would escape any
sexual stirring. This is not true, no matter how
one might wish it to be so. Sexual arousal occurs
in both children with autism who speak as well
as non verbal individuals. It is one of the basic
urges of our species.
The internal 'clock' for each individual's sexual
awakening appears to be an entirely personal affair.
Some parents told me of children who were having
erections and masturbating at the age of eight.
(There were children who did so at a much younger
age, but the act appeared to be related to stimulation
of a sensory nature rather than connected to,
for example, being near the opposite sex). Others
spoke of arousal appearing in later years, even
as late as the early twenties.
The items which caused arousal were also varied:
the opposite sex, pictures of women in lingerie,
metal bowls, feet and so on. Many of these items
seem rather odd, even bizarre to us, but they
should not seem too surprising given the varied
sensory involvements, in general, of individuals
with autism.
What is more important is to focus on TIME and
PLACE:
What can you do appropriately (and safely) . Where,
and when is it appropriate to do so?
This is a lesson that should start at a very
early age. For instance, a youngster with autism
can be considered 'cute' if he hugs people indiscriminately,
or sits on their laps, but this rapidly becomes
inappropriate and carries the threat of being
misinterpreted if it continues into adolescence
or adulthood. Items like the value of comprehending
correct 'social distance' when standing near someone,
are all part of the basic social skills that need
to be begun while the child is young.
Since early education surrounding these issues
is so important, an open rapport between families
and service providers ( such as educators) is
crucial so that when matters related to sexuality
appear in later years, they can be approached
more easily.
A great number of the anecdotes which were described
to me fell into the category of benign paraphilia.
In other words, on the surface the events appeared
to indicate some sort of sexual deviance on the
part of the individual, but in fact with some
analysis, it turned out that the individual needed
to learn the social rules I.E. the young man who
urinated in a public bathroom with his pants down
around his ankles, the fellow who unzipped his
trousers prior to going into the washroom.
The illusion of sexual deviance can also be connected
to one's environment. In one situation a man with
autism followed young girls. It was discovered
that he simply had no appropriate same-age peers
with whom to socialize.
It is widely accepted that individuals with autism
are visual learners. In order to teach the individual
What is appropriate it is necessary to use the
same techniques that have been successful in other
areas. This may mean modeling, using photos or
line drawings, reducing language prompts and even
'how to' videos. A number of slide shows, sequential
photos, anatomically correct dolls and other resources
are commercially available.
Inappropriate behaviour, such as beginning to
masturbate in a public place, needs to be redirected
without fuss. It might be decided that the individual
needs to be redirected to some form of physical
activity. At other times, the young person might
be redirected to the appropriate PLACE and TIME
that has been designated for self stimulation.
Each scenario, and the strategy which is to be
used for that young person, must be decided individually.
The ability to decide what might be a correct
strategy can often be gleaned from closely observing
the young person's behaviour over a period of
time. For example, does self stimulation occur
when the child is bored at a certain time of day?
( redirect to an activity scheduled into that
time slot); when the child is anxious? ( attempt
to eliminate the cause of the anxiety) ; when
the individual sees a certain object? ( reduce
the individual's exposure to that object) and
so on.
It is important to also examine the individual's
communication system to see if he/she has the
correct selection of visuals, gestures and opportunities
in order to express the need, for example, to
go to a private PLACE -which might be the photo
of a particular washroom.
There are many more issues related to sexuality
and adolescence in general which I do not have
the time to discuss in this article such as :
teaching personal hygiene; an appropriate health
education curriculum; changes in health such as
the onslaught of seizures or depression; as well
as the natural power struggle for independence
that occurs in every household that contains teenagers.
There are no magic answers. Much of what you encounter
will have to be dealt with using strategies on
a " trial and error" basis.
Teens and adults with autism present us all,
parents and professionals alike, with huge life-long
challenges. They also offer us, as individuals,
opportunities to develop empathy and unconditional
acceptance. You cannot be exposed to a son, daughter,
child or adult with this disorder without being
affected. Issues related to sexuality are basic
to the Human Nature of us all.
Whether your experience of this challenge is
positive, and promotes personal growth, lies entirely
in the open-minded manner by which you approach
the individual, and the issue.
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