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By Maureen Bennie
Parenting in North America is an isolating experience.
Most families do not have extended family living
with them or near by to help with childcare. We
live in communities where we barely know our next
door neighbors let alone the people three doors
down. A typical family has a father at work all
day while the mother is either at home with the
children or working outside of the home for part
of the day. Single parent households are common
too, usually lead by the mother. Take any of these
scenarios and add looking after small children
in isolation with one or more of the children
having autism and you have a mother who is feeling
overwhelmed, down - possibly depressed.
Receiving an autism diagnosis is just a small
part of the journey a mother takes with her child.
Grieving is a part of living with an autistic
child and the grieving process occurs over and
over again whenever there is a transition or change.
I know this is true of myself. Even though my
son's diagnosis is over two years old and my daughter's
is a year old, I still have periods of sadness.
My most recent bout has been over my son transitioning
into a new school setting for the fall. Trying
to find the right school program for him has been
an agonizing challenge.
How is a mother to survive these constant trials
in the world of autism? Over the past two years
I have found certain things helpful in combating
the blue days. Here are a few ideas to save your
sanity.
· Create a strong support system. It is
important to have friends or family members you
can count on when the chips are down. Surround
yourself with friends who are accepting of your
situation and share your parenting values. I have
a circle of friends who are single, married with
typical kids, or have a child with autism. Each
person gives me something inspirational. I arrange
to spend time with friends both alone and with
children for social interaction. Family members
give the unconditional love and support.
· Use respite care. As mothers, we often
feel guilty about leaving our children with someone
else, especially if a child is difficult. Everyone
needs a break and it is important to take time
for you. You don't need to plan something fancy
every time you want to have time away from the
children. I like to go to friend's house, walk,
read a book in a coffee shop, look at the new
books in the library, go for a sail, or write
in my journal. None of these activities cost big
money. I used to worry how my children would cope
with someone else and the truth is, they behave
better when I'm not at home - typical kids! Take
a look at my "Desperate for Respite"
article to find ideas on how to find good childcare.
· Allot some time in the day that is just
for you. For some moms this may be after the children
are dropped off at school. For me it is 8:30 p.m.
to 10 p.m. after the kids are in bed. I don't
do housework; just something I enjoy doing. This
can be a leisurely bath without someone banging
on the door, writing a letter, reading a novel,
calling a friend, or watching TV. Do whatever
makes you happy. Use your special time to nurture
yourself and recharge your batteries.
· Exercise and eat right. Yes, we've all
heard this a hundred times but being physically
healthy is important in order to have the energy
to face the day to day challenges of special needs
child rearing. I've never been one for exercising
but since starting to exercise regularly I've
noticed positive changes in my mood and increased
energy. I sleep better too. Try to find something
you enjoy doing or something that the kids can
do too. We love family bike rides. The kids ride
in a burly cart and love looking at the sights.
Yoga has been a personal lifesaver for me because
it involves clearing your mind of troublesome
thoughts. Whatever you enjoy doing, try to make
time for some exercise at least three times a
week.
Stay away from fast food/junk food eating. Try
"investment" cooking where you
prepare large portions of food for freezing such
as spaghetti sauce or soup. Try to eat a variety
of fresh fruits and vegetables. Keep your pantry
well stocked with the basics. There is nothing
more stressful than having to make an emergency
trip to the grocery store with the kids in tow.
· Look after your mental health. Too often
we neglect how we're feeling emotionally. If you
are having trouble sleeping, notice an increase
or decrease in appetite, feel overwhelmed, out
of control, down, anxious, unmotivated, or find
yourself sleeping too much you may be depressed.
See your family doctor if your mood does not improve.
Join a parent support group to talk with other
families who are experiencing the same concerns
you have raising a child with autism. Most large
cities have an autism society or association that
provide parental support.
· Try a new activity. They say variety
is the spice of life so why not add something
new to your roster? Join a book club, play a community
sport, try a cooking class, sign up for painting
lessons, see live theatre, train for a half-marathon
- the possibilities are endless. I have a friend
who plays in a badminton league at her local club.
I discovered yoga seven months ago. It is the
little things that keep us going.
· Pamper yourself. A beauty treat is great
boost and makes you feel good. Try a facemask,
deep condition your hair, take a bubble bath,
paint your nails, or color your hair. I had my
first manicure and pedicure two years ago while
on a respite break and they are now a part of
my monthly routine. A massage can take away stress
and tension. A beauty treat can be a nice boost
to your day.
· Take a "break" from autism.
Mothers tend to want to do everything possible
for their children. We read books about autism,
attend lectures about autism, surf the Internet
for information about autism, go to autism conferences,
and talk with professionals and other parents
about autism. While all of this can be good to
do, doing it all of the time will drive you crazy.
Take a break from autism to learn about something
completely different. I make a point of reading
Oprah's magazine and book selection every month
for a reading diversion. I subscribe to the Globe
and Mail to keep up with national and world news.
It's amazing how many people on this earth struggle
with problems.
Taking time out to care for you is not selfish
but necessary for self-preservation. Dealing with
the issues around autism is both emotional and
draining. Looking after your health and well being
is good for the entire family. It takes great
amounts of energy to face the challenges of raising
a child with autism. We all need a little bit
of escape even if it is only for a few hours during
the week. Forget about the guilt of being kind
to you - in the end you will be a better person
for having taken the time to develop your own
interests and creating a few personal diversions.
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