There are many twists and turns for a family with special needs children.
Although a doctor’s diagnosis opens the door to much assistance needed in caring for special needs children , no parent expects to hear their child has a disability.
With Alex, our youngest son, early intervention was a great jump start in dealing with his mild ataxic cerebral palsy. He was diagnosed at six months.
The unexpected “twist” was that because of the support Alex received at that time, the doctor literally voided the diagnosis since, apparently, Alex no longer qualified.
However, because of the intervention we now call him Mr. Chatty Cathy, whereas if he had not had intervention he may have never spoken.
This was good news at the time, though his doctor, after seeing how well Alex was doing at home, said “Alex is not a CP kid.”
In addition, as a family, certain support was not available to us.
This set of circumstances presented many challenges to say the least.
Things like speech and language therapy had to be paid out-of-pocket to the tune of hundreds of dollars per week. Without significant resources, the bills add up very quickly. To say it was difficult is an understatement.
You may have heard the phrase “Easy come, easy go” or “What the Lord gives, the Lord may take away.” Given the reversed diagnosis, we had to push forward, remaining grateful for Alex’s improvement.
Either way, in Alex’s case, there was a direct benefit to early intervention. Alex could speak and understand certain concepts but was unable to put those concepts together into a complete thought.
For example, when pictures of a baseball bat, a football, a softball, a cash register, and a pair of skates were shown he had difficulty understanding that was a sporting goods store.
The bottom line here is that we are happy he can talk and communicate with us as his life would be much more difficult without having this early type of intervention.
Our goal with Autism Today is to make resources available for everyone through early recognition, diagnosis and subsequent strategies for improvement.
What struggles have you had with a diagnosis of a special needs child?
How did you or your family manage this process in order to best help?
Please share your story with me, what you did and how it worked.
To share your story, leave a comment below.
As always, I look forward to hearing from you.
Mother, Wife, Author, Founder & CEO of AutismToday.com
P.S. Here are tips, strategies, and tools I recommend for you to understand and cope with the diagnosis of a special needs child.
To download a video presentation that will help you understand the nature of this situation, click this link: