Near Death Experience Prior to News of Special Needs Child

When Alex was just 6 months old, I was finally able to hold him in my arms after a long stent in the hospital.

Up until that point l was recovering from a near death experience following Alex’s birth.

My parents stayed with me during my recovery period and Mom got to know Alex better than she normally would have.  She practically was his surrogate Mom for the first 3 months or so as I was unable to move much at all.

What a true joy it was to finally hold Alex knowing that family was beside me the entire time.

Being in an extended afterglow since Alex’s birth, I thought everything was fine even when Mom told me that Alex was unable to support his weight on her legs when she held him in an upward position.

Then Mom mentioned that Alex’s eyes would sometimes jiggle back and forth.

I figured she was likely over reacting.

Mom took careful notice of these issues. They caused her great concern so we took Alex to the pediatrician.

They immediately scheduled Alex for a CT scan.

After the scan the doctor said, “Mrs. Sicoli, are you sitting down?” to which I replied “Yes”.

“The good news is that Alex doesn’t have a brain tumor” the doctor said.  That comment in itself stunned me because I truly believed he was fine. Then the bad news…Alex had CP!

I couldn’t believe my ears.

It had been only 3 years since my older son had been given the diagnosis of autism and now I had another special needs child to content with.  Though it was quite a shocker, I am so thankful that I at least had a head start and knew what avenues to take next in order to get him into the right programs.

As with Jonathan’s autism, early intervention is critical and our family moved forward with a plan to deal with this CP diagnosis head on.

How did you deal with a surprise diagnosis of your special needs child?

What were the steps you took (initial and long term) that best prepared you to cope?

When did you realize any missteps and what did you do to correct or otherwise minimize them?

Make a difference and share your story by leaving your comment below.

Your dedication is empowering and I look forward to hearing from you.

Karen Simmons
Mother, Wife, Author, Founder & CEO of


P.S. Here is something I would like to recommend that will give you the tips, strategies, and tools you need to help understand and cope with initial diagnosis of a special need child.

To download a video presentation that will help you cope with the diagnosis of a special needs child, click this link:


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