FAQ's with Author and Speaker, Karen Leigh Simmons
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Subject: psychological evaluations
Karen Leigh SimmonsQuestion - our 21/2 year old daughter just had a psycholgical evaluation because of concerns about possible HFA or Asperger's. The eval came back that shew does have some sensory concerns but is just a temperamental child, however her adaptive behavior scales show her as being delayed, I.E. Communication age equiv 2-4, daily living skills 1-6, Socialization 1-5, and Motor skills 1-9. The diagnosis doesn't fit the test results, what do we do now? The psychologist is reccomending a preschool for children with behavior problems. She doesn't have behavior problems, she chews on string, doesn't eat any food that she can smell, first thing she says in the morning "I want a pink dress", is very light sensitive, has low muscle tone, can't stand having food touch when on a plate, lines up her toys, does not engage in imagintive play such as playing with dolls, always picks up her toys without be told to, prefers the company of adults over children her age. The list goes on and on. She has other problems as well such as Reflux disease, which has caused asmtha, has severe bouts of eczema during the summer months ( lasts 12 weeks). Her speech was very delayed due to a lossof hearing in her left ear (genetic on my side my biological father is deaf in his left ear also). I have scheduled her to see a peditrician that specializes in Autism, PDD, and Aspergers. I have read quite a bit about High functioning autism and Aspergers and Ciaran really sounds like an Aspergers. Should I keep pushing for a diagnosis or go with the psychologist eval. I really could use some advice on what I do now? I hope you can help me with this, and I appreciate any inforamtion you can offer.
Thank you for your time.
Caroline

Answer - Keep pushing for the diagnosis. You are your child's best hope for success. Continue to be persistent and get several opinions. I would start with the local Autism Society and ask them where the best place to start is.

Subject: Medication for 7yr. old with Aspergers
Question - My 7 year old is just finishing up the 1st grade. His teacher informed me that since about Feb. my son has had a very hard time holding his focus. He saw a neurologist about a year and a half ago. We have been getting the run around for the past year to get him back in because his neurologist has since left the city. His appt. is for the end of May. My son is starting to fall behind in school and I would like to know if Ritalin would be an option. I don't like the idea of medication but don't see any other alternative. His 1st neurologist suggested a different drug but I forgot what the name of it was. Is this common practice to medicate a child with aspergers? Is there anyone else having the same problems?
Deborah

Answer - Hi Deborah, I knowwwww what you mean. Until I put Jonny on Dexedrine, I was skeptical. Even after putting him on it, I still didn't know how much GOOD it was doing for his attention span until we decided to do a blind placeabo (sp?) test at his school. The results: from a kid who was practically got kicked off the bus to a much more calm, socially appropriate kid. I swear by meds. Of course, they must be the right kind for the right kid. I haven't heard a great deal of good about Ritalin. Perhaps suggest Dexedrine to your doctor and see what they say.

Subject: Could my child have this?
Question - Karen, I have a 2 year daughter who is very independent and persistent. Lately, she has been very obsessive about doing things herself and repeating statements...she is very intellegent for her age, already speaking in full sentences and saying her abc's, counting to 10 and identifying letters of the alphabet. We have a family history of Tourette Syndrome, and have thought that she may be showing signs of Obsessive Compulsiveness, but also heard about this and wanted your opinion. The main reason I even thought about this is because I have mentored a young child with Tourette's who also had a sibling with Asperger's, and along with myself having Tourette's, my 4 year old son has been diagnosed with a tic-disorder (which I feel will eventually be diagnosed as Tourette's). In reading about Autism/Asperger's, I realize that my daughter doesn't show many symptoms...she does well in social situations (with occasional "bashfulness" that soon disappears), and as I said before, she speaks very well and has no problem communicating and expressing herself. It's just mainly that sometimes she will get so upset or obsess over the littlest things, and continue repeating statements or questions. What do you think? I only want to do what's best for my children, and I believe it's extremely important to handle things properly from the beginning in order for them to be able to handle themselves as adults. I'm sure you agree! I look forward to hearing what you have to say. Who knows...maybe her actions are those of a typical 2 year old girl, but with our medical history, I can't overlook any possibilities.
Thanks for your time.
Patty

Answer - Good for you, Patty trying to find out at an early age.
If you go to my site: www.autismtoday.com and the About Autism link at the bottom of the page is a section on characteristics. That will give you warning signs to look for.
Early intervention is key in the long term outcome of these children. Of course, I am not in the position to diagnose her though autism/pdd can be diagnosed behaviorally. From what you say, the social and communication piece doesn't seem to fit for autism but I would certainly have her checked out. These kids have been known to be very social and communicative.
for resources, check out: www.exceptionalresources.com hope this helps

Subject: autism
Question - Karen~ I am currently a teacher's aid at a local elementary school, I work with a first grade class. Do you have any suggestions on how I could get the children to understand and accept some of their classmates who have disabilities?
Wendy

Answer - Hi Wendy, Funny you ask that question. That was the exact reason I wrote my book "Little Rainman, Autism Through The Eyes of a Child" so that the kids, teachers and others could understand my son, Jonny, better. Of course, there may be too many words for their age group so would have to be shortened a bit by the teacher.
Another book is "Special People Special Ways" It can be found at www.exceptionalresources.com

Subject: wilbarger brushing
Question - I have a 6 yo son dx with AS. We have been doing the brushing therapy both at home and at school. Now the Special Ed Director is saying that he doesn't believe that it is a valid treatment and that we should discontinue it at school. He essentially challenged me to find information, studies and parenting accounts that would support the use of the brushing technique. What information can you give me to the above. Any links, or studied that you could give me along with general information would be appreciated.
Thank you
Christine

Answer - Christine, I know we used this method on my son and am sure there is lots of info out there. Did you try going to www.google.com and put the key words wilbarger brushing in? I am sure that if you visit www.sensoryresources.com they can steer you in the right direction. Also, check out www.exceptionalresources.com


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