Autism Today Foundation

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Autism from the Soul, Stories

Kids Say the Darndest Things

This touching anecdote shares a moment between a mother, her son Hunter who has a rare chromosome disorder, and her daughter Brooke. After explaining Hunter’s condition to Brooke, they encounter an older man with special needs at a salon. Brooke immediately recognizes the similarities in behavior between the man and her brother, expressing her understanding by saying, “He must be missing a chromosome too!” This moment highlights Brooke’s empathy and understanding, showing how children can have profound insights into the experiences of others, even at a young age.

Stories

Becoming a woman

Doreen Marcionetti recounts her experience raising her daughter Ainslee, diagnosed with Autism-PDD/nos and a seizure disorder, who is now 17 years old. Despite the challenges they faced, one particular incident stood out when Ainslee, at the age of 11, excitedly informed her parents about getting her period, displaying unexpected joy and enthusiasm. This incident highlights Ainslee’s unpredictable yet memorable reactions to various situations, reminding her parents of her unique perspective on life despite their initial fears and concerns.

Stories

The Thanksgiving Tree

On Thanksgiving weekend in Michigan, Scott reflects on the small tree he and his wife Penni planted three years ago, rescued from a dumpster behind a local garden center. Despite its scraggly appearance, they nurtured it with optimism and dreams of its future beauty and usefulness. Scott’s enduring hope and perseverance, mirrored in his past experiences, extend to both the tree and his son Evan, who faced medical challenges at birth. Through their love and determination, Scott and Penni demonstrate the power of hope in overcoming obstacles and finding joy in the journey, embracing life’s imperfections with optimism and resilience.

Stories

Mattie and Bee Visual LLC

The author recounts their journey with their son Mattie, who was diagnosed with Asperger’s syndrome at age 2. Despite facing challenges such as limited access to services and a difficult learning environment, they tirelessly pursued resources and education, ultimately finding solace during a vacation where Mattie found comfort in water. Inspired by their experiences, the author developed visual support tools to aid children with special needs, leading to the creation of Bee Visual LLC. Despite facing financial risks and setbacks, they remain committed to helping families navigate similar challenges and provide structure for children with developmental delays. Mattie’s progress and resilience serve as a source of hope and inspiration throughout their journey.

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Dr. Daniels, National Autism Coordinator at the U.S. Department of Health and Human Services, directs the NIH’s Office of National Autism Coordination and serves as Executive Secretary of the Interagency Autism Coordinating Committee.

Pranjali Kharmode, VP of Autism Today Foundation, brings 14 years of experience in pediatric neurophysiotherapy and women’s health. She’s known for her holistic approach and holistic therapy programs in Edmonton.