Autism Today Foundation

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Autism from the Soul, Stories

The Love of a Sister

This heartfelt story recounts the journey of a family with boy/girl twins born in November 1998, one of whom was diagnosed with autism three years later. Despite the initial shock, the family embraced the diagnosis and sought various therapies and support. When the mother purchased t-shirts to support an autism group, her daughter, Julianne, questioned the purpose of the shirts and what a cure for autism meant. Julianne’s response, expressing her love and acceptance of her brother just the way he is, brought tears to her mother’s eyes and highlighted the profound bond between the siblings. The mother realized that both her children were special in their own ways, and she couldn’t imagine changing her son with autism because it would alter the essence of who he is and who they love.

Autism from the Soul, Stories

Kids Say the Darndest Things

This touching anecdote shares a moment between a mother, her son Hunter who has a rare chromosome disorder, and her daughter Brooke. After explaining Hunter’s condition to Brooke, they encounter an older man with special needs at a salon. Brooke immediately recognizes the similarities in behavior between the man and her brother, expressing her understanding by saying, “He must be missing a chromosome too!” This moment highlights Brooke’s empathy and understanding, showing how children can have profound insights into the experiences of others, even at a young age.

Stories

Becoming a woman

Doreen Marcionetti recounts her experience raising her daughter Ainslee, diagnosed with Autism-PDD/nos and a seizure disorder, who is now 17 years old. Despite the challenges they faced, one particular incident stood out when Ainslee, at the age of 11, excitedly informed her parents about getting her period, displaying unexpected joy and enthusiasm. This incident highlights Ainslee’s unpredictable yet memorable reactions to various situations, reminding her parents of her unique perspective on life despite their initial fears and concerns.

Stories

The Thanksgiving Tree

On Thanksgiving weekend in Michigan, Scott reflects on the small tree he and his wife Penni planted three years ago, rescued from a dumpster behind a local garden center. Despite its scraggly appearance, they nurtured it with optimism and dreams of its future beauty and usefulness. Scott’s enduring hope and perseverance, mirrored in his past experiences, extend to both the tree and his son Evan, who faced medical challenges at birth. Through their love and determination, Scott and Penni demonstrate the power of hope in overcoming obstacles and finding joy in the journey, embracing life’s imperfections with optimism and resilience.

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Dr. Daniels, National Autism Coordinator at the U.S. Department of Health and Human Services, directs the NIH’s Office of National Autism Coordination and serves as Executive Secretary of the Interagency Autism Coordinating Committee.

Pranjali Kharmode, VP of Autism Today Foundation, brings 14 years of experience in pediatric neurophysiotherapy and women’s health. She’s known for her holistic approach and holistic therapy programs in Edmonton.